As a lot of you know, i spent a part of last week on capitol hill "being a lobbyist." If i came away from the experience with anything, it's that i am a terrible lobbyist; thank god i excel at food packaging design.
|Luckily, i had this incredibly distracting hair wing going on the entire time i was meeting with very important people about a very serious issue|
The HD Parity Act addresses two things.
1. The out of date diagnostics. People are not diagnosed early enough because they only list chorea (uncontrollable body movements, like in Parkinson’s Disease) as a diagnosable symptom. This is complete and utter bullshit, as the psychological aspects can be just as debilitating, and can set in early. (i.e. my dad locking us in the basement with no power to protect us from spies. He was obviously sick, and obviously needed medication, but lacked any physical manifestations at the time, and was misdiagnosed.)
2. The need for immediate care after diagnosis. There is no cure or treatment, but there are some really amazing drugs out there that help control the symptoms, and slow the disease down. But they are expensive. Really expensive. Medicare would make these drugs accessible. MEDICARE GOOD. And honestly, my dad spent 3-4 years in a nursing home. People who get the drugs they need when they need them require a lot less professional care in the long run. This makes sense people.
|I had to channel my inner "Loop Looks" for a capitol hill appropriate outfit.|
The best part of the Senate? There are dogs everywhere. Not like drug-sniffing dogs. Normal dogs that I got to pet. Who would have thought??
The worst part of the Senate? The brie and cucumber sandwich. I was not impressed. And I was prohibited from photographing it, which seems a little intense.
|Sadly, there was no time for sight seeing, but i did get to see the capitol building!|